Tuesday, March 27, 2012

Facts Only Please!

First; this is a fact to me. I live my life with RSD/CRPS on only proven facts. Even facts about using post it notes placed all over you home for you goals and such. Treat with human dignity, love and respect. Eat breath live what you want! It just might help us all move faster toward World Peace.

Story goes like this; I just had gotten off the phone with my mother. I called to tell her I was in my worst ever RSD Flare, in which she then told me of her bad news, I'm glad I was able to be there for her in time of need. Both were a pain that runs so deep. We had an adult conversation. Yeah! We both shared! Yeah! Score for us! She got to hear how Brain Fog, my ever changing RSD brain works when I'm flaring. I dislike this FACT so much!

We hung up and I went into kitchen to get a water. (Water has been proven to help reduce the swelling and muscle pain) Fact! No DR ever told me that, I actually have educated all DR's I have come into contact with. Fact!

went into kitchen, got there and couldn't figure out why I was there. I went back to room. Sat on the bed and realized it was the water. I went to get it and saw next to the frig the recycle bag had yet to be put up. OK, add the since I'm right there. Go back to room and for gotten the dang water. Only now I'm worn out. I got the water right next to me now, I had to sit and write about the about how RSD changes our brain. Our memory goes and then dementia can set in. FACT ; I don't like! I got lost going to pick my daughter up from school last Monday and called my in laws for help to get me there fast, I was now late. I had to tell my husband. 

Communication of your REAL right now is so important. There is roll revering and addressing such full range issues of the family unit to be a success therapy is suggested by me and my whole family unit. FACT to us. Not Pain Management but a general counselling. Even when you not thinking you need it, you do. If children are in the home, they need it too. FACT!


Oh, important why this is coming right now and in a bad flare up.  I needed to sit my butt down cuz, I'm flaring and have zero strength and I needed to sit and not push any longer, for as in my flares, I go from able to disabled. Muscle are on fire when in use. New FACT to me! 



* This text can be sloppy and the flow may be off. Thank you for spell check and your understanding!  After writing about it, I'm not angry at myself for my inability, I'm at peace with it. 

Sunday, March 18, 2012

Guest Posting Cajun Man, Jerry Paul Pond

I have found in my life that there is nothing like having you in it.
Your only requirement of me is to be myself and you are yourself
With you I can say whatever is on my mind, you know that you never have to worry because what we have is based on love, hope and is not based on perfection, but on respect and acceptance

With you we can share most things, knowing that the beauty and value of each is a part of us both we be recognized and appreciated.
Where distance has no meaning or power, the bridge we built is made of love, hope, smiles, laughter understanding, memories, joys, and a little sorrow; this is what keeps us connected

With you I feel safe, your there for me anytime, even through the roughest of storms in the mighty swamps of life.
I know that in you I can trust, I can believe in you and count on you, even in long distance I know that you’re at my side and you give me peace within my heart, because of you I am never alone

Because of you I have a heart filled with happiness, love, smiles, laughter, hugs, sunny days when the sun is not shining and hope

Sending you Cajun hugs and love
Thanks for just being you
Love you 

Friday, March 16, 2012

It's Hard To Explain

It is hard to explain to someone when all of a sudden your body hurts in such a way that is so far from your normal everyday self. When it hurts so bad that just holding a paper plate makes all your muscles from the shoulder blade on down to the tips of your fingers feels like you just the hardest work out of your life on each and every muscle in there. There is no way you can just give me one more pull up, well it happens to RSDer's everyday. 

Not that we can give you no more but rather, just right now. Each of us flare up differently, with the pressure changes on top of Flare Up, we are then faced with even a newer different feeling that even we will never be used to. Take a moment to educate. 

Studies have been done and have proven, that the use of Vitamin C, 500 mg for 5 weeks! can help in reducing your chances of developing RSD both before and after surgery, and after injury. 

Makes me think we all need to just eat better all the time to prevent most disorders and syndromes that face human life. 

Written based off life with RSD, why? Cuz I do care! Share and make aware!

Thursday, March 1, 2012

Guest Julia Carriker My Mother


When a generic drug will cure or alleviate horrific pains in a family member, but insurance won’t pay for it, as it has not been studied .   Why it is not studied? The answer is, in that it is already generic, so there is no motivation because no big money will be made,  so no one will pay for the study.  Insurance companies use this as a justification to say that they will not cover the treatment.  Capitalism at its worst.  Damn CEOs can afford it though-

 Now you are at the mercy of the only practitioner that will give the medication, which has not been studied, but which works.  Next you are exploited to get this generic medication and overcharged by the private physician.   
You might get it when you have to pull the rest of your 401k out (after the crash)  out in a loan to pay for these treatments that are$ 1500 a day but are the only known medication that truly relieves the most painful of conditions called RSD/CRPS.  People even leave the county to get into comas to try to alleviate this pain, but a family can be devastated, lose their home be destroyed by the illness, and there is no help.

 Is humanity this unkind to each other?  No, but COMPANIES are, and they do not care. It is up to you to CARE ,  it is up to you to !!! OCCUPY  !!!  demand kindness- WE are the 99%  WE all deserve better than this.    

RSD/CRPS can happen to anyone after an injury as small as a bee sting, or after a surgical treatment to a limb, a break of an ankle, a sprain or a variety of other injuries. .  The medication is a generic called Ketamine.  It is very safe when used in anesthesiology, and is often used because of that when an unconscious un reporting   patient arrives.

I saw a family devastated by this illness when the mother got it all over her body after a car accident and injured her ankle.  The disease spread all over her body to all of her limbs.  The home she lived in became too hot for her to physically tolerate as pain was too intense to handle.  Even breezes from  fans on the skin are too much, and thread on sheets  are too painful,  even touch at all is too intensely painful to be tolerated a times sometime atrophy attacks as well, and limb use is lost. The pain of this illness is one where people will result to treatments such as a coma to get relief.

People do not know about  this illness so I usually tell them to think about House the Dr on TV and his foot, and issues with pain meds and  different experiences.  He has this disease in only one foot. Fictionally in the TV case, the pain stops end take. 

Funds were exhausted, the family had no choice but to leave their home and search for a climate that would cause less pain.  There is no help for them as they search, no services for ‘transients’ ;  it should have never happened.  The insurance should have paid for the infusions from the beginning.  The CEOs and such decided not to pay.  The family was devastated financially; the husband, left on his own,  with two devastated children, the mother still in pain-horrific pain, and no help. When a person can’t even be touched is crying in pain and a generic cheap drug exists but they can’t get it, this should be a crime. 
Put them in handcuffs for their cruelty        OCCUPY  !

Is humanity this unkind to each other?  No, but COMPANIES are, and they do not care ABOUT PEOPLE.  It is up to you to CARE ,  it is up to you to !!! OCCUPY  !!!  demand kindness- WE are the 99%  WE all deserve better than this. 

Guest Daniel Winner


Much like a wild horse just broken, he felt the yoke of reality placed on his head and around his neck.  The rose tinted glasses he’d worn for so long, now cracked.  He’d a new found understanding for reality and how it not only affected him, but also how it affected others. 
Life could be warm, like a fuzzy sweatshirt fresh from the dryer on a wint..