A Winner Of A Milestone

A milestone beyond comparison!

Today marks the FIRST day since my car accident that triggered the pain of RSD/CRPS that my family will do their job. My husband will go to work and do what he knows best, Warehousing! My kids will get up and do their job, go to school without fear.

I will be home, alone :~) my job has changed, I now advocate for others and help to raise awareness to this syndrome, I also help to raise flags on other important issues I would have never looked at unless I was diagnosed with RSD/CRPS like food and alternative ways to heal the mind, body and soul.

No one to step on toes with, I can do all my little ADD things without anyone saying anything. I worked hard to get to the point in my RSD life to not need. My husband helped so much in this. The pushing of "you can and you will" made all the difference. I'm sure some of my choices helped too, but I'm on me and my family right now :~)

RSD/CRPS is a bitch of a syndrome, there is no denying that. It hurts and kills people; it breaks down a human like nothing else. It tears apart marriages. Children of the afflicted are dying not knowing what to do. Not for lack of trying, this family attempted to be in therapy and all from the get go. Still my son and husband had a breakdown. Since the breakdowns, it drew attention to the issue that so needed to be addressed, the whole family!

Accident 12.2.09

DX of RSD 1.11.10

Son Breakdown 5.26.11

Hubby Breakdown 10.13.11
Created Support Group for whole family 11.24.11

Both Kids in school enjoying life 9.4.12
Husband back in his Career 10.18.12

By no means is the healing done, but we are now on track. Before moving back to Texas, we did lots of therapy. Intensive Transitional Therapy for both kids in home and out, Marriage Therapy, Family Therapy. I swear by therapy, it is the building blocks needed after a big traumatic accident and diagnosis. If the breakdowns had not happened, we would NOT have been able to get therapy. Even with all the private insurance or cash in the world, you still HAVE to have a therapist be willing to treat you.

Education is still needed, small towns and even large metropolitan areas need our voice to remain loud. New demands from the RSD/CRPS Community, of the Health Community are helping to pave the way for those being diagnosed today. We have been told not to be quiet and that our voice is important. Thank you to the other's diagnosed way before me, they told us how important it was to stand up for ourselves and our family and to advocate and help others when we can. In keeping this in mind, I will every day do something for others and my family. We have stood tall when others, even family attempted to beat us down! I will not let RSD/CRPS win, it does not own me.  The tools we had been given for so many years needed modified.  This takes time and willingness to change.

Today, RSD Doesn’t Own Me or My Family! It is hard, but letting in the good times and not giving up when the bad times are here is so imperative.  Today’s struggle is different than yesterdays and tomorrows. Today you can decide to not let RSD Own YOU! We are on your side today and everyday! Thank you for caring, I care too.

The RSD/CRPSer